Marfan Life - Living with Marfan Syndrome -

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta

For medical information about Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia

Raising Marfan Syndrome Awareness

Carol Arnette, Francesca Malara and Jeanette Navia help raise Marfan syndrome awareness in the local paper in Williamsburg, Va., The Virginia Gazette. November 26, 2005. Clicking on the article will take you to a larger version. It takes a very long time to load, but you can read the article.

For medical information about the Marfan syndrome that is currently approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.

Marfan Life Partners

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