NEW THEME: Sorry for the possible confusion, but I prefer this new look. You must log in to edit. To register, click the login link above.
Once logged in, you can edit these pages. To edit a page, click the Edit tab at the top of a page, or type the title of the page in the Quick Edit a Wiki Page in the left-hand corner. To add a new page, type a new page title into the Quick Edit a Wiki Page below. I will add the page to this front page when it's finished.
What is this?
This is a wiki, which anyone reading this can edit. People in the Marfan community can add their experiences and their knowledge of what it's like to live with the Marfan syndrome. At the moment (December 2006), there isn't much here yet, but the site will grow with time.
DISCLAIMER: These pages are created by people who may or may not have any medical training. The editors could be anybody. They may not even have any connection to Marfan whatsoever. Do not take anything as absolute truth. Check with your physician before doing anything crazy.
Lifestyle
The Marfan community
Managing symptoms
Dealing with doctors
Miscellaneous
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