ÿþ<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0//EN"><html> <head> <title>What is the Marfan Syndrome?</title> <meta name="author" content="Jeanette Navia"> <meta name="keywords" content="marfan, syndrome, mailing, list, listserv, majordomo, e-mail"> <meta name="date" content="5-5-2001"> <link rel="stylesheet" type="text/css" href="../style_sheets/marfan.css"> </head> <body> <h1>What is the Marfan Syndrome?</h1> <div class="type"> <p>From the <a href="http://www.marfan.org/pub/factsheet.html"><em>National</em>Marfan<em>Foundation</em> factsheet:</a></p> <p>The Marfan syndrome is a heritable disorder of the connective tissue that affects many organ systems, including the skeleton, lungs, eyes, heart and blood vessels. The condition affects both men and women of any race or ethnic group. It is estimated that at least 200,000 people in the United States have the Marfan syndrome or a related connective tissue disorder.</p> <p>For the most up-to-date information about the Marfan syndrome, please visit the <a href="http://www.marfan.org"><em>National</em>Marfan<em>Foundation</em></a> website</p></div> <div class="lists"> <h1>Links to general information about the Marfan syndrome</h1> <ul> <li>Search <a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi">MedLine</a> for abstracts of articles in the medical literature<br /> (Use the term <em>Marfan</em> to search)</li> <li><a href="http://vector.cshl.org/ygyh/"><img src="../images/ygyhlogobutton.gif" /> Your Genes Your Health</a> Video clips about the syndrome from the DNA Learning Center, Cold Spring Harbor Laboratory </li> <li><a href="http://www.childrenheartinstitute.org/educate/marfan/marfan.htm">What is the Marfan syndrome?</a> a visual tour from the Children's Heart Institute</li> <li><a href="http://www.ncbi.nlm.nih.gov/disease/Marfan.html">Marfan syndrome</a> from the National Center for Biotechnology Information</li> <li><a href="http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?154700">Marfan syndrome</a> from the Online Mendelian Inheritance of Man (OMIM) database</li> <li><a href="http://www.americanheart.org/Heart_and_Stroke_A_Z_Guide/marfan.html">Marfan syndrome</a> information from the American Heart Association</li> <li><a href="http://www.aap.org/policy/00978.html">Pediatricians' Health Supervision for Children with the Marfan Syndrome</a> from the American Academy of Pediatrics </li> <li><a href="http://www.medscape.com/server-java/Vsearch?Action=FilterSearch&ServerKey=Primary&oldestMonths=36&newestMonths=0&Theme=Power&Company=Me
This uses a very simplified form to only present the options you find on many commercial e-card sites, such as Hallmark.ape_res.hts&Filter=medscape_filt.hts&collection=Coll2&QueryText=marfan&group=Clinical">Medscape articles on the Marfan syndrome</a></li> <li><a href="http://www.mostgene.org/gd/gdvol16e.htm">Marfan syndrome</a> from Genetic Drift</li> <li><a href="http://www.marfan.org/pub/resourcebook/gent.html">The revised diagnostic criteria for the Marfan syndrome (1996)</a></li> </ul> </div> <div class="lists"> <h1>More Links</h1> <ul> <li><a href="speclinks.html">Links for information about specific symptoms</a></li> <li><a href="miscellany.html">Miscellaneous Marfan links</a></li> </ul> </div> <p class="navbar"><a href="../index.html">Home</a> | <a href="../contacts/index.html">Contacts</a> | <a href="../pictures/index.html">Marfan Pictures</a> | <a href="../fellow.html">Personal Websites</a> | <a href="index.html">Info Links</a> | <a href="../card.html">E-Cards</a> | <a href="../search.html">Search</a></p> </body> </html>
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