Marfan Life

Symptoms: Tall, thin stature - Long fingers - Unusually long arms and legs - Curvature of the spine

Make A Wish Come True

Filed under: News stories, Fund-raising, Marfan individuals — Jeanette at 11:16 pm on Monday, November 6, 2006

Giving man still helping after death

Filed under: News stories, Obituaries, Marfan individuals, Includes photo(s) — Jeanette at 10:35 am on Sunday, November 5, 2006

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deseretnews.com | Giving man still helping after death
By all accounts, Jordan Fowers of Farmington was a giving sort of person. He was the kind of guy who, if you were riding next to him on an airplane, he’d give you the armrest. The kind of guy who, when he went off to Mexico five years ago for an LDS mission, gave his watch away to his first companion. The kind of guy who, two years later when he came back home to Farmington, barely had the suit left on his back because he gave everything else away.
Which explains why Jordan’s family is so intent on honoring his memory by giving away something with his name on it.

Marfan sets him apart

Filed under: News stories, Marfan individuals, Includes photo(s) — Jeanette at 12:23 am on Wednesday, October 25, 2006

Athlete died from torn aorta in heart; player had recent team doctor visit

Filed under: News stories, Obituaries, Marfan individuals, Includes photo(s) — Jeanette at 3:46 pm on Wednesday, October 11, 2006

Oregon Health & Science Univ Will Study Marfan Syndrome, Other Causes Of Aortic Aneurysms - (Medford Article)

Filed under: News stories, Research — Jeanette at 11:05 am on Sunday, October 8, 2006

Aretha Franklin to Perform in New York City on November 14

Filed under: News stories — Jeanette at 8:15 pm on Tuesday, October 3, 2006

Big Hearts, Deep Pockets Comedy fund raiser

Filed under: Fund-raising — Jeanette at 9:25 am on Sunday, October 1, 2006

Press-Telegram - Local battled Marfan’s

Filed under: News stories, Obituaries — Jeanette at 6:29 am on Saturday, September 23, 2006

Deborah Yolanda battled Marfan’s

Filed under: News stories, Marfan individuals — Jeanette at 6:28 am on Saturday, September 23, 2006

Marfan Study Basics - ISV for Healthcare Providers

Filed under: Losartan, Research — Jeanette at 6:20 am on Thursday, September 14, 2006
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