Send information about local events to jnavia
SupportMarfan.com
When you visit certain online shops (Amazon.com, Land's End, Target and others) through the SupportMarfan.com website, the retailer will donate a certain percentage of the sale to the NMF.
Henry's Hearts
Send a gift basket to someone and support the NMF! Co-founded by a 10-year-old boy named Henry who has the Marfan syndrome, this website offers wonderful gift baskets of high-quality goodies. 30% of the purchase price is donated to the NMF.
Books or Chapters in Books
Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.
Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.
Websites by Marfan Patients to Help Other Marfan Patients
Marfan Communities
Local Chapters of the National Marfan Foundation
