Marfan Life
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta

The Marfan Community

Research Opportunities You Can Help With

Marfan Syndrome Information

Miscellaneous Pages


What is the Marfan Syndrome?

The Marfan syndrome is a heritable disorder of the connective tissue that affects many organ systems, including the skeleton, lungs, eyes, blood vessels, and, most seriously, the heart and aorta. The condition affects both men and women of any race or ethnic group. It is estimated that at least 200,000 people in the United States have the Marfan syndrome or a related connective tissue disorder.

While not all people with Marfan exhibit all symptoms, common characteristics include tall stature, disproportionately long arms, legs, fingers and toes, indented or protruding chest bone, scoliosis, flat feet or high arches, and nearsightedness.

Please note: The place where the most up-to-date medical information currently approved by doctors studying the Marfan syndrome is the National Marfan Foundation website

visitors since June 11, 2001.
Marfan Life Info