Marfan Contacts U-V

Michael Vance, Southern California
I have Marfan's and am a college student living with this disorder.
Bone_Jones_00

David Vaughan, Knoxville, TN
I'm 60 years old and self-diagnosed my condition (Marfan syndrome)2 years ago after an echocardiogram indicated moderate aortic insufficiency. This discovery put me into the American Medical Association Medical Encyclopedia which identified Marfan syndrome as one of the causes along with Rheumatic Fever. After looking at pictures at the University of Tennessee's Preston Medical Library, I knew the rest of the story.

My characteristic are telling pigeon breast, arched palate, double-jointed fingers, elongated thumb, 13AAAA shoe size, crowded teeth, narrow jaw, 6'2", long arms, asthma, etc. Last year a CT scan revealed a 5+cm abdominal aortic aneurysm which I had repaired. Recovery was quick and I'm doing fine. I also had a retinal tear 4 years ago which required a scleral buckle to repair in the eye which was myopic and has had no fusion since birth. Over the last 2 years I've had 2 cataract surgeries to correct sight difficulties.

My dad who died at 74 with a brain tumor had many of the Marfan characteristics (unbeknown to him) as well as a brother and sister. My sister's children show signs of being marf-like as do my brother's kids. By the way, I was the bearer of the news to my brother and sister; their grateful and taking action.

I am fortunate to recieve medical care from an internist in Knoxville who lost his wife 5 years ago to complications from Marfan syndrome on her third aortic root surgery. I live every day to its fullest, travel a lot with my lovely wife, and work hard. I must say that making the discovery that I did has had a profoundly positive impact on my life since I now cherish people, life, happy moments with family and myself more than ever.
Regards,
davaughan

Georgiann Vidrine, Ragley Louisiana
I'm a 55 year woman of Irish Descent and Black Dutch I only found three years ago that I had this /Upon eye exame I was approached as to why the clinic still had recordsafter 20 something years.Apparently at the age of 24 it was diagnoised but I was not .Ihave had interoccular lens implant and have vision of 20/35

The doctors in Houston Texas took several pictures to use for study. They stated that I have some of the most symtoms in one person. The only one that I dont appear to have is in the artia area.I have a son and daughter that shows signs and possible my grandaughter.
ccgal