MarfanLife.net | News blog

The Marfan Trust The Marfan Trust was set up in November 1988 in London to fund research into the cause and possible prevention of Marfan Syndrome and to assist with patient support.

Patients facing a long reach into the future “Marfan in the 21st century has a very different prognosis from the one it had at the time of Lincoln’s birth to illiterate parents in a log cabin at the start of the nineteenth century.”

Pemaquid Man Ready to Set Sail: “Later this week, if the wind and the waves are right, Danny Sicotte of Pemaquid hopes to sail out of Rockland Harbor on board a 100 foot sailing vessel, RawFaith.”

Sports: FSU has several reminders of ex-teammate: “TALLAHASSEE - You can’t miss Ronalda Pierce.

She’s featured on the first page of this season’s Florida State women’s basketball media guide. An action cutout picture and her nickname, ‘Nautica,’ is emblazoned on a T-shirt her parents and siblings wear. Her jersey number, 55, is on a chic sneaker Nike specially designed for the Seminoles.
Then there are the less tangible, but no less real, signs of her presence. ‘We’re dedicating this season to her,’ sophomore guard Alicia Gladden said. ‘She was a good player, a good teammate, a good friend. We know that she wants to be here.’”

Heart of Iowa Chapter of the NMF was approved as a chapter of the National Marfan Foundation on October 30. Congratulations!! They’ve always been a strong and active group — now they’re an official chapter.