February 15th, 2007 by
Jeanette
Sunderland Today News - Special day in tribute to tragic Liam
DEVOTED family and friends of a young Sunderland fan who died from a rare condition will gather tomorrow to remember him.
Posted in News stories, Obituaries, Marfan individuals |
No Comments »
February 14th, 2007 by
Jeanette
Pectus Excavatum: Magnetic Mini-Mover Procedure (3MP)
For more than 50 years, pectus excavatum has been corrected by major surgical reconstruction through the use of either the Nuss or Ravitch procedures. Both of these procedures require big operations and hospitalization for pain management.
Posted in News stories, Treatment |
No Comments »
February 14th, 2007 by
Jeanette
Study to Explore Using Magnets to Correct ‘Sunken Chest’ - Medgadget - www.medgadget.com
Few events in life are more nerve racking for a parent than the thought of a child undergoing surgery. That is why researchers at the University of California are working on a minimally invasive solution for the most common chest deformity, pectus excavatum.
Posted in News stories |
No Comments »
February 14th, 2007 by
Jeanette
Broken Hearts - Nevada Appeal Brian and Kristi Rasmussen’s problems run deeper than anything a skilled surgeon can fix. Both are afflicted with heart disease, which has put them through six surgeries. They fell in love almost 10 years ago, and married on a hot August day. Since then, they’ve been struggling to get by, jumping from home to home and job to job. Every day brings uncertainty. Their one hope: A better life for their two children.
Posted in News stories, Marfan individuals, Includes photo(s) |
No Comments »
February 8th, 2007 by
Jeanette
Named after Antoine Marfan, the French pediatrician who first described it in 1896, “Marfan syndrome†is a genetic disorder of the body’s connective tissue. February is National Marfan Syndrome Awareness month.
…
For the up to an estimated 200,000 Americans who currently have been diagnosed with the disease, there is no known cure. But according to Lexington resident Suzanne Kouri, president of the Massachusetts Chapter of the National Marfan Foundation, “There has been an upsurge in research in recent years, including a new ongoing study at Children’s Hospital in Boston, and much more work has been done to alleviate the symptoms.â€
Posted in News stories, Marfan individuals, Includes photo(s) |
2 Comments »
February 7th, 2007 by
Jeanette
Marfan what? Life with Marfan Syndrome > General News > Stories > Denver > YourHub.com
inding myself single at the age of 55, I became romantically interested in a female co-worker and friend of several years. After we dated awhile it became obvious that we were going to spend our lives together. She said that there was something you must know before committing; she said “I have Marfan Syndrome.” At that moment I didn’t have a clue what “Marfans” was or the impact it might have on her life and the life of her loved ones.
Posted in News stories, Marfan individuals, Includes photo(s) |
No Comments »
February 6th, 2007 by
Jeanette
Marfan syndrome subject of genetics seminar - Baylor College of Medicine
HOUSTON — (February 5, 2007) — The latest in genetics regarding Marfan syndrome in children will be discussed during anseminar this month featuring experts from Baylor College of Medicine in Houston.
Posted in News stories |
No Comments »
February 5th, 2007 by
Jeanette
Nashuatelegraph.com: Local/Regional
Q. Some people say Lincoln’s signature lankiness and oddly shaped face were really symptoms of Marfan Syndrome, is this true or was he just tall?
A. Since Marfan Syndrome was not discovered until 1896, Lincoln would not have known about it. He was always conscious of his unusual height, describing himself as being “6 foot 4, nearly.†Lincoln did exhibit some of the symptoms of Marfans’, like extreme height, long hands and feet, but there is still some controversy over whether a Marfan’s diagnosis is correct. The experts don’t agree.
Which experts?
Posted in News stories, Abraham Lincoln |
No Comments »
February 4th, 2007 by
Jeanette
[an error occurred while processing this directive]
Common Blood Pressure Drug Reduces Progressive Muscle Degeneration in Mice | Huliq: Breaking News
Scientists supported in part by the National Institutes of Health’s National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and National Institute of Neurological Disorders and Stroke (NINDS) have found that that the commonly prescribed blood pressure medication losartan improves muscle regeneration and repair in a mouse model of Duchenne muscular dystrophy (DMD), a devastating disease characterized by rapid progression of muscle degeneration in boys and young men.
Posted in News stories, Losartan, Research |
No Comments »
February 1st, 2007 by
Jeanette
Polo tribute to women: South Florida Sun-Sentinel
What: National Girls And Women in Sports Day
When: Feb. 7
Of note: Beginning today throughout the nation, thousands will celebrate the achievement and participation of women and girls in sports, including polo, over the next week. This year’s theme is “Throw like a girl, lead like a champion.”
History: The day began in 1987 as a day to remember Olympic volleyball player Flo Hyman for her work to assure equality for women’s sports and to celebrate 30 years of Title IX. Hyman died of Marfan’s Syndrome in 1986.
Posted in News stories, Sports |
No Comments »