MarfanLife.net | News blog

Matchmakers on Fox Chicago
For some people., Valentine’s Day is filled with sweet candy and beautiful flowers.For others–nothing but wilting memories of romance gone sour.

<em>I know at least one Marfan individual and one Loeys-Dietz individual featured in the Tall Club segment.</em>

Sunderland Today News - Special day in tribute to tragic Liam
DEVOTED family and friends of a young Sunderland fan who died from a rare condition will gather tomorrow to remember him.

Pectus Excavatum: Magnetic Mini-Mover Procedure (3MP)
For more than 50 years, pectus excavatum has been corrected by major surgical reconstruction through the use of either the Nuss or Ravitch procedures. Both of these procedures require big operations and hospitalization for pain management.

Study to Explore Using Magnets to Correct ‘Sunken Chest’ - Medgadget - www.medgadget.com
Few events in life are more nerve racking for a parent than the thought of a child undergoing surgery. That is why researchers at the University of California are working on a minimally invasive solution for the most common chest deformity, pectus excavatum.

Broken Hearts - Nevada Appeal Brian and Kristi Rasmussen’s problems run deeper than anything a skilled surgeon can fix. Both are afflicted with heart disease, which has put them through six surgeries. They fell in love almost 10 years ago, and married on a hot August day. Since then, they’ve been struggling to get by, jumping from home to home and job to job. Every day brings uncertainty. Their one hope: A better life for their two children.

Named after Antoine Marfan, the French pediatrician who first described it in 1896, “Marfan syndrome” is a genetic disorder of the body’s connective tissue. February is National Marfan Syndrome Awareness month.

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For the up to an estimated 200,000 Americans who currently have been diagnosed with the disease, there is no known cure. But according to Lexington resident Suzanne Kouri, president of the Massachusetts Chapter of the National Marfan Foundation, “There has been an upsurge in research in recent years, including a new ongoing study at Children’s Hospital in Boston, and much more work has been done to alleviate the symptoms.”

Marfan what? Life with Marfan Syndrome > General News > Stories > Denver > YourHub.com
inding myself single at the age of 55, I became romantically interested in a female co-worker and friend of several years. After we dated awhile it became obvious that we were going to spend our lives together. She said that there was something you must know before committing; she said “I have Marfan Syndrome.” At that moment I didn’t have a clue what “Marfans” was or the impact it might have on her life and the life of her loved ones.

Marfan syndrome subject of genetics seminar - Baylor College of Medicine
HOUSTON — (February 5, 2007) — The latest in genetics regarding Marfan syndrome in children will be discussed during anseminar this month featuring experts from Baylor College of Medicine in Houston.

Relation of aortic root dilatation and age in Marfan’s syndrome — Aburawi and O’Sullivan 28 (3): 376 — European Heart Journal
Aims The main aim of this study was to describe the age at which pathological aortic root dilation occurs in patients with Marfan’s syndrome (MFS).