MarfanLife.net | News blog

Sunderland Today News - Special day in tribute to tragic Liam
DEVOTED family and friends of a young Sunderland fan who died from a rare condition will gather tomorrow to remember him.

Review: In Search of the Blues by Marybeth Hamilton |Guardian Unlimited Books
(The story is that [Robert Johnson] was poisoned; an article in the British Medical Journal last year also posited Marfan’s syndrome - a connective tissue disorder, symptoms of which, such as spindly fingers and limbs, Johnson seemed to share.)

Non-disclosure of family history cited as court dismisses widower’s appeal
The Newfoundland Supreme Court of Appeal has ruled against a man whose wife and newborn child died a decade ago, in part because his wife did not disclose her family health history to a physician.

Coroner: U. T. Basketball Player Suffered from Marfan’s Syndrome
(Toledo, OH) — The Lucas County Coroner said Thursday that a University of Toledo basketball player who collapsed and died during practice in October 2006, had genetic defect in the aorata.

deseretnews.com | Giving man still helping after death
By all accounts, Jordan Fowers of Farmington was a giving sort of person. He was the kind of guy who, if you were riding next to him on an airplane, he’d give you the armrest. The kind of guy who, when he went off to Mexico five years ago for an LDS mission, gave his watch away to his first companion. The kind of guy who, two years later when he came back home to Farmington, barely had the suit left on his back because he gave everything else away.
Which explains why Jordan’s family is so intent on honoring his memory by giving away something with his name on it.

Athlete died from torn aorta in heart; player had recent team doctor visit
A University of Toledo basketball player had been seen by the team’s chief physician just days before his sudden collapse and death Monday of an acute heart condition.

Press-Telegram - Local battled Marfan’s
CERRITOS - Deborah Yolanda Sahli knew what she was dealing with when symptoms of the genetic disease known as Marfan syndrome began cropping up with increasing frequency a few years ago.

Yet despite losing her 22-year-old son, mother, grandfather, two brothers and a cousin to the disease, Debbie refused to let the disorder dampen her spirit.

We remember on this day June 11th, 2006

• Edgar Alegria
• Ciara Quinn
• Virginia B. Areen
• Carolyn Jean Powell
• Amy Barnes
• Joe Neustadt
• Jeff Goldman
• Dr. Holly Fickel
• Christian Banke
• Elizabeth I. Curts
• James C. Curts
• Francis W. Olson
• Susan Marchese
• Francis Colby
• Jimmy Conway
• Frank Krowzack
• Colin Peter Irish
• Arthur Sidney Irish
• Louise Doyle
• Thomas Doyle
• Timothy Doyle
• Patrick Bryant
• Neta Slotowski

Maya sent me these. Her best friend, Sandy, died when they were 13 years old. Here is Sandy’s square.

Linda Kay Atchison

On November 4, 2004, the Iowa Marfan community lost a member and friend. Linda Atchison, 39, died of complications from the Marfan syndrome in Leon, Iowa. She was diagnosed with the disorder when she was 14-years old.