March 29th, 2006 by 
Jeanette
“Jessica Falco, 19, of Pound Ridge, NY, who is affected by the Marfan syndrome, a potentially fatal disorder of the body’s connective tissue, is scheduled to testify today before the U.S. House of Representatives Appropriations Subcommittee on Labor, Health and Human Services and Education to increase awareness about this debilitating and sometimes fatal condition.”
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March 21st, 2006 by Jeanette
“AUGUSTA — Matthew Blake turns 40 this month. For most people it would just be a birthday. For Blake, it’s a miracle — his second.
“Complications from Marfan syndrome almost killed him when he was 18, and he’s been lucky to survive a half-dozen surgeries since then.”
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March 10th, 2006 by Jeanette
“It started with name-calling and escalated into violence. Caroline Stillman - aged 13 and 6ft 3in tall - tells Cassandra Jardine how she was hounded out of school”
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March 4th, 2006 by Jeanette
“When documentary maker Janet Merewether spotted an exceptionally tall woman in a nightclub, she immediately suspected that her excessive height was due to Marfan Syndrome - a rare genetic disorder that also results in long, slender limbs and fingers, a long face, partial blindness and a weak cardiovascular system.” About Jabe Babe.
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