Other online Marfan communities
- Long Tall Folks’ Journal A Live Journal community
- Yahoo! Group Marfans Support and Chat
- Yahoo! Group Marfans Support Group
- Yahoo! Group Massachusetts Marfan Group
- Yahoo! Group Mega Stringbean’s “the ORIGINAL skinny club!” Age-restricted. Must be a Yahoo! member, over 18, to access
- Yahoo! Group Christians With Marfans
- MSN Group Living with Marfans
- MassMarf - Massachusetts Marfan Group
- Marfan support and information in NSW (New South Wales, Australia)
- Marfan Association UK Forum Once there, click on Forums
- Marfan Life Forum
- Mailing List van Marfan.nl in Dutch
- Contactgroep Marfan Nederland in Dutch
- Marfan Francophone a Yahoo! group in French
- Yahoo! Group Marfan Syndrome in Singapore