MarfanLife.net | News blog

Couple honored for work with Marfan foundation
Barbara and Steve Hawthorne, of Freehold, were honored by the National Marfan Foundation (NMF) with a Silver Service award for their contributions to the Marfan community. The Silver Service awards are part of the NMF’s 25th anniversary celebration. These recognitions for 18 NMF members were based on nomination by their peers for outstanding volunteer service.

Music for Marfan (8th paragraph)
Temescal Trio—Madeline Prager (viola), Karen Wells (clarinet), John Burke (piano)—will perform a benefit, Music For Marfan, Sun. Dec. 3, 3:15 p.m. at St. John’s Church, 2727 College Ave., with selections from Shostakovich, Brahms and Mozart, followed by a dessert buffet. Marfan is an inheritable condition that affects the connective tissue in one in five Americans. Admission for concert and buffet, $.

ETonline.com: Aretha Franklin Performs Benefit Concert
Only ET was invited backstage with ARETHA FRANKLIN during her special charity performance Tuesday night in New York.

The “Queen of Soul” broke the news that she’ll pay tribute to her friend and former CBS newsman ED BRADLEY at his memorial service next week.

“I’ll be singing,” she added. “I used to see him down in New Orleans all the time.”

Aretha was in New York to perform at the Hammerstein Ballroom in a benefit show for the National Marfan Foundation (www.marfan.org).

EURweb.com - Black Entertainment | Aretha Franklin in Concert
The National Marfan Foundation presents Aretha Franklin, a benefit concert from the heart of the Queen of Soul, on Tuesday, November 14, 8:00 pm, at the Hammerstein Ballroom (Manhattan Center Studios, 311 West 34th Street, between 8th and 9th Avenues).

deseretnews.com | Rupture of aortic aneurysm is bad news
The aorta runs thick as a garden hose from the heart down through the chest and into the abdomen, where it splits into blood vessels that supply oxygen-rich blood to each leg. It’s the body’s biggest artery, it’s vital and, should an aortic aneurysm rupture, it’s very bad news.

WTOK | Make A Wish Come True
Colin Mochrie and Brad Sherwood were at the Riley Center Saturday doing what they do best… Improv comedy. With the help of The Make A Wish Foundation they helped to make a dream come true.

Andrew Conley attends Southeast Lauderdale where he is like any other kid his age. He knows everything there is to know about the Lord of the Rings and he loves to laugh. Andrew also has Marfan Syndrome, a connective tissue disorder. One of the symptoms of the disorder is scoliosis, or a curvature of the spine. Because of this, he had to have back surgery.

deseretnews.com | Giving man still helping after death
By all accounts, Jordan Fowers of Farmington was a giving sort of person. He was the kind of guy who, if you were riding next to him on an airplane, he’d give you the armrest. The kind of guy who, when he went off to Mexico five years ago for an LDS mission, gave his watch away to his first companion. The kind of guy who, two years later when he came back home to Farmington, barely had the suit left on his back because he gave everything else away.
Which explains why Jordan’s family is so intent on honoring his memory by giving away something with his name on it.