Features of Marfan syndrome:

Tall, thin stature - Long fingers - Unusually long arms and legs - Curvature of the spine (Scoliosis) ~ Chest bone that sticks in or out ~ Flexible joints ~ Crowded teeth ~ Nearsightedness ~ Dislocated lenses ~ Stretch marks (not due to pregnancy) ~ Collapsed lung ~ Aortic dilation ~ Aortic dissection ~ Mitral valve prolapse ~ Leaking valves in the heart

Meet a little bundle of joy

September 23rd, 2004 by Jeanette

Teesside (U.K.) - Meet a little bundle of joy The grief of a Teesside widow has turned to joy after fulfilling her late husband’s last wish by giving birth to a baby boy.

Posted in News stories, Obituaries, Marfan individuals, Includes photo(s) | No Comments »

Big Hearts, Deep Pockets in Des Moines, Iowa

September 21st, 2004 by Jeanette

DesMoinesRegister.com | People/Places: “‘Big Hearts, Deep Pockets,’ a comedy show benefit, will be hosted by the Heart of Iowa Chapter of the National Marfan Foundation on Oct. 8 at Spaghetti Works, 310 Court Ave.” in Des Moines.
Scroll down a bit.

Posted in News stories, Fund-raising | No Comments »

Sports: Autopsy on FSU woman supports initial findings

September 16th, 2004 by Jeanette

Sports: Autopsy on FSU woman supports initial findings Dr. Alan Braverman, a cardiologist and professor at Washington University’s School of Medicine who’s director of its Marfan syndrome clinic, said the DNA analysis also should prompt Pierce’s immediate family to be genetically tested.

Posted in News stories, Obituaries, Marfan individuals, Sports | No Comments »

National Marfan Foundation is Lead Advocate for Education on Emergency Diagnosis and Treatment of Aortic Dissection

September 11th, 2004 by Jeanette

National Marfan Foundation is Lead Advocate for Education on Emergency Diagnosis and Treatment of Aortic Dissection

Posted in News stories | No Comments »

MSNBC - Fashion: Starting to Walk Tall

September 9th, 2004 by Jeanette

MSNBC - Fashion: Starting to Walk Tall: “Discouraged by the lack of fashionable offerings, Caputo and Carreras?an actress and model?last year launched Tall Couture, an online boutique stocked with clothes that not only fit, but that they would feel proud to wear.”
Tall Couture Don’t get too excited. The prices are couture, too!
Thanks, Nancy!

Posted in News stories | 1 Comment »

Bruce England on Jeopardy!

September 9th, 2004 by Jeanette

Okay, this is not about the Marfan syndrome. However, it is about the husband of Ellen England, who is very active in the Marfan syndrome community. I would be posting this reminder on Marfan-List, but the List is down right now and for the foreseeable future. (It should be up this weekend, but it’s hard to tell. When Isabel came through here in Virginia last year, some places were without power for two weeks). In any case, Monday, September 13, Bruce England will be on Jeopardy, so all of you who know him from NMF conferences and Northern California Chapter cookouts, be sure to watch!

Posted in General | No Comments »

Marfan Life Partners

marfanlife.org v 4_3