Features of Marfan syndrome:

Tall, thin stature - Long fingers - Unusually long arms and legs - Curvature of the spine (Scoliosis) ~ Chest bone that sticks in or out ~ Flexible joints ~ Crowded teeth ~ Nearsightedness ~ Dislocated lenses ~ Stretch marks (not due to pregnancy) ~ Collapsed lung ~ Aortic dilation ~ Aortic dissection ~ Mitral valve prolapse ~ Leaking valves in the heart

Marfan sets him apart

October 25th, 2006 by Jeanette

Yakima Herald Republic Online: Marfan sets him apart
Lanky, long and lithe, DeVonte Combs is a basketball coach’s dream.

At least a foot taller than anyone else in his class, he’s the type of youngster sports fans watch through the years with gleeful anticipation.

He’s been told, in fact, to stop playing basketball before he gets to high school.

Posted in News stories, Marfan individuals, Includes photo(s) | 2 Comments »

Athlete died from torn aorta in heart; player had recent team doctor visit

October 11th, 2006 by Jeanette

Athlete died from torn aorta in heart; player had recent team doctor visit
A University of Toledo basketball player had been seen by the team’s chief physician just days before his sudden collapse and death Monday of an acute heart condition.

Posted in News stories, Obituaries, Marfan individuals, Includes photo(s) | No Comments »

Oregon Health & Science Univ Will Study Marfan Syndrome, Other Causes Of Aortic Aneurysms - (Medford Article)

October 8th, 2006 by Jeanette

Oregon Health & Science Univ Will Study Marfan Syndrome, Other Causes Of Aortic Aneurysms - (Medford Article)
PORTLAND, Oregon - Oregon Health & Science University will host one of five regional clinical centers for the study of genetically triggered thoracic aortic aneurysms and other cardiovascular complications as part of an initiative funded by the National Heart, Lung and Blood Institute (NHLBI) of the National Institutes of Health.

Posted in News stories, Research | No Comments »

Aretha Franklin to Perform in New York City on November 14

October 3rd, 2006 by Jeanette

Aretha Franklin to Perform in New York City on November 14
The National Marfan Foundation presents Aretha Franklin, a benefit concert from the heart of the Queen of Soul, on November 14, 8 pm, at the Hammerstein Ballroom (Manhattan Center Studios, 311 West 34th Street, between 8th and 9th Avenues).

Ticket prices are $500, $250 and $200 for orchestra seating and $125 and $75 for mezzanine seating. Tickets are available through Ticketmaster beginning October 9.

Posted in News stories | No Comments »

Big Hearts, Deep Pockets Comedy fund raiser

October 1st, 2006 by Jeanette

DesMoinesRegister.com
WEST DES MOINES - 7 p.m. Saturday: “Big Hearts, Deep Pockets.” “Comedy Co-Operative” will perform. Benefits Heart of Iowa Chapter of the National Marfan Foundation’s educational programs and conference scholarships. Billy Joe’s Pitcher Show, 1701 25th St., West Des Moines. $10 in advance, $12.50 at the door. . www.heartofiowa.org.

Posted in Fund-raising | No Comments »

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