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Symptoms: Tall, thin stature - Long fingers - Unusually long arms and legs - Curvature of the spine


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kyw.com - Health: Diagnosing And Treating Marfan Syndrome

Filed under: News stories, Marfan individuals, Includes photo(s), Video with article — Jeanette at 3:10 am on Saturday, July 1, 2006

kyw.com - Health: Diagnosing And Treating Marfan Syndrome
CBS 3) PHILADELPHIA Millions of people who are tall and thin could have a potentially deadly disease and not know it. Now there is a breakthrough new treatment that could save lives and Medical Reporter Stephanie Stahl reports on the details.

19-year-old Jessica Jolly is so double jointed she can contort her body in all sorts of ways.

She’s also tall and thin with extra long arms and a narrow face all of which are signs of Marfan syndrome.

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