January 25th, 2006 by 
Jeanette
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“… With a working title of The Tzadik of the California Club, the screenplay chronicles the life of the late Rabbi Dovid Bryn, an orthodox Lubavitch rabbi whose life was cut tragically short at age 40 by Marfan syndrome, a condition that affects the body’s connective tissue. For over a quarter of a century, Rabbi Bryn - the son of Holocaust survivors - courageously battled the fatal disease that decimated his heart, yet managed to minister to, counsel and save tens of thousands of Jews and non-Jews alike….”
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January 24th, 2006 by Jeanette
“It was a Sports Illustrated story that gave Stephen Hawthorne the clue that he might have Marfan syndrome.
‘I was 19 years old, a student at Villanova and I read about Flo Hyman, the Olympic volleyball player who collapsed and died while playing,’ says the 40-year-old Freehold resident. Hyman died 20 years ago today.”
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January 24th, 2006 by Jeanette
“Are athletes engaged in intense training or competitive sports at risk of suddenly dropping dead from heart problems?”
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January 14th, 2006 by Jeanette
Rocky Mountain News: Rockies & MLB: “A FATHER’S TRAGEDY: Rockies outfielder Jorge Piedra is mourning the loss of his infant daughter, Eva, who died Dec. 31. She was born Sept. 29 with an enlarged heart and was hospitalized until Nov. 12.
It appeared Eva had Marfan Syndrome, a connective tissue disorder that can cause an enlarged aorta when it affects the heart.
Shortly after Thanksgiving, Piedra, who lives in Frisco, Texas, said doctors determined Eva’s heart was growing rapidly and suggested putting her on a drug typically used to control high blood pressure but one that had reversed the symptoms of Marfan Syndrome in some adults but had not been used with an infant.”
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January 12th, 2006 by Jeanette
“A special two-disc set of the �Rent� film, based on Jonathan Larson�s Tony and Pulitzer Prize-winning musical of the same name, will arrive in stores Feb. 21 from Sony Pictures Home Entertainment.”
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January 12th, 2006 by Jeanette
An Emsdale couple’s troubles with the Northern Health Travel grant are to be addressed directly by the Minister of Health.
Parry Sound-Muskoka MPP Norm Miller took Calvin and Penny Ulrick�s difficulties directly to the Minister George Smitherman in December asking for assistance for their particular circumstances, along with a problem affecting many critically ill residents in his riding.”
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January 6th, 2006 by Jeanette
Brothers walk for research [Leamington Spa, England]: “Two brothers affected by a rare tissue disorder are preparing for a series of walks to raise awareness of their condition.
Southam man John Bishop, 52, suffers from Marfan syndrome, as does his sibling Geoffrey, 49. The condition weakens connective tissue around a number of the body’s vital organs, leaving it prone to stretch or rupture.”
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