Books, movies, music having some connection to Marfan syndrome
Books:
Popular books about living with the Marfan syndrome often contain information that is more difficult to find in medical textbooks or web sites. The books listed here include information about living with the syndrome.
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Own Your Health, by Roanne Weisman
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Your Sick Child: Fever, allergies, ear infections, colds and more, by John D. Mark, M.D., and Roanne Weisman
- Pain: Back pain, arthritits, migraines, joint pain and more, by Adam Perlman, M.D., and Roanne Weisman
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Healthy to 100: Aging with vigor and grace, by Alexa Fleckenstein, M.D., and Roanne Weisman
Roanne Weisman and her son have Marfan, and in some sections of Own Your Health, they share their experiences. Roanne has co-written the three other books, with medical experts, in her Own Your Health series. All of Roanne’s books are higly readable and are full of good advice.
- The Truth About Chronic Pain: Patients and professionals on how to face it, understand it, Ooercome it, by Arthur Rosenfeld
A whole chapter is about Mathew Rudes’ experiences. Mathew was born with severe Marfan symptoms.
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Chicken Soup for the Fisherman’s Soul: Fish Tales to Hook Your Spirit and Snag Your Funny Bone, by Jack Canfield, et al.
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.
- Sweetie’s Diamonds, by Raymond Benson
This is a mystery fiction book where one of the main characters, a 13-year-old boy, has Marfan syndrome. It’s not a bad portrayal of the syndrome, except that it is implied that Marfan skips a generation (a grandparent has Marfan, the boy has Marfan, but the mother does not). Other than that, it’s pretty good. Good story, too, if you don’t mind reading about the adult film industry.
Movies:
- Rent
- Gattaca
Music:
- Rent soundtrack
- John Tavener
