Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Sunday, August 07, 2005

More from the Iowa Chapter of the NMF
Posted by Bryan Jones at 7:36 AM



Wow - This is one active group! Here is a picture from last year's "Big Hearts, Deep Pockets," a comedy show to benefit the Marfan Syndrome. It was held in memory of Scott Kiefer, a local comedian who died of complications from the Marfan Syndrome. See the complete story in the Iowa Chapter's Spring 2005 Newsletter (Adobe Reader required).


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