Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Saturday, August 06, 2005

Have Heart Wristbands
Posted by Bryan Jones at 2:33 PM

My wife and I were captivated by the Tour de France this year. Each day we looked forward to watching the race on OLN. The yellow bands that Lance Armstrong has made famous are sold to raise money for cancer research, but did you know that the NMF sells similar red bands to help raise money for Marfan research? You can learn more about them and make a purchase if you'd like at this site.


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