Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Saturday, August 06, 2005

Halfway point!
Posted by Bryan Jones at 9:00 PM

Whew... it's 9pm here in Spring City, PA. Only 12 more hours to go.

I'll use this as an excuse to be a slacker for a few minutes and make myself something decent to eat. Or should I order a pizza? Hmmm...

I do feel I have to post this warning: If folks don't email me some more stuff to blog, I'll be forced to post pictures of myself, including scars and hospital gowns and other scary things. :)


I want to see pictures! Keep it up Bry, you're doing great! Now I wish I was still on the west coast to help you get through the night. LOVE SAL

By Sally, at 9:29 PM  

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