Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Thursday, August 11, 2005

The Cincinnati Post - Are you standing tall? Join the club
Posted by Jeanette at 6:40 PM

Are you standing tall? Join the club: "'I'm just here to promote tallness - that and awareness of tall people,' said the 6-foot-3 Heater.

To that end, Heater said, the club pioneered the development of the California king-size mattress, which is 4 inches longer than your standard king size to accommodate king-size snoozers."


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