Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Thursday, August 11, 2005

CBBC Newsround | I'm 13 and 6 foot 2 inches tall
Posted by Jeanette at 7:36 AM

CBBC | I'm 13 and 6 foot 2 inches tall: "Press Packer Matthew has a rare medical condition called Marfan Syndrome which makes him tall and thin. In his report he tells us what Marfan Syndrome is and how it affects him."


Thanks, Press, for posting. I'm a mom with 6 grown children and have just become aware of the great possiblilty that there is Marfans in our family. I also have a nephew who is 13 and 6'2", tall & skinny with long hands and feet. I just told his mom Sunday that she should consider having him looked at for Marfan. I have now sent your comments to her.

By Anonymous, at 1:36 AM  

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