Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Saturday, August 06, 2005

Catie
Posted by Bryan Jones at 8:30 PM


"This is a picture of our daughter, Catie, she has Marfans. She is 18 years old and off to college in the fall. We are very proud of her and the way that she has incorporated Marfans into her life. She did a presentation on Marfans for her science fair project when she was in 5th grade, this year the student council at her high school sold the Marfans bracelets and she was the "Poster Child" for it. Like I said she is off to college in two weeks and will be playing on the Women's Golf Team for Lincoln College in Lincoln, Illinois."
Debbie Clark


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