Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Saturday, August 06, 2005

Another picture from the Marfan Israel goup
Posted by Bryan Jones at 9:28 PM

Here's another photo from a meeting of the Marfan Israel group.


Es gibt NEWS zu Marfan-Syndrom. Das wollte ich heute in Englisch und Deutsch der Marfan-Initiative in Israel zusenden. aber ich finde leider keine eMail-Adresse.
Würden Sie bitte zurückmailen: ich würde Ihnen dann gerne sogleich ein Exemplar meines internationalen Rundmails zusenden; Danke.

By Claus Schroeter, at 11:41 AM  

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