Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Sunday, August 07, 2005

And finally, here's a picture of Jeanette doing her part in St. Louis!
Posted by Bryan Jones at 9:03 AM



As many of us in the Marfan community know, Jeanette spends alot of her time and effort maintaining web sites and an email-list dedicated to the Marfan Syndrome. After staying up for this Blogathon, I have a better appreciation of how much work it takes to maintian this kind of thing -- It takes alot of work.

Thank you Jeanette!


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