Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Thursday, July 28, 2005

ScienCentral: Sudden Killer
Posted by Jeanette at 7:31 PM

ScienCentral: Sudden Killer: "Ruptured aneurysms kill 30 thousand Americans each year, and unfortunately, many people don't find out they have one until it's too late.But this ScienCentral News video explains how one woman's [Carmela Kolman's] rescue led to countless other lives being saved."


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