Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Sunday, July 24, 2005

Heart surgery changes game for Lakers' second-round pick
Posted by Jeanette at 11:03 AM

Heart surgery changes game for Lakers' second-round pick:
"Ronny Turiaf was getting ready to make his pro basketball debut with the Los Angeles Lakers. He signed a contract last week. Then he took a team physical."
...
"The two most common factors that lead to sudden cardiac deaths are hypertrophic cardiomyopathy, or an enlargement of the heart muscle; and Marfan's syndrome, which often leads to a weakening of heart valves. When a person overexerts, those conditions can be fatal."


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