Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Thursday, June 09, 2005

Swampscott Reporter - Letter: Walk was a success
Posted by Jeanette at 7:32 AM

Marissa Walk Was a Success: "To all Marissa Walk supporters:
On behalf of Eye of the Tiger Karate, Shaping Zone for Women of Salem and the Broady family, we would like to thank you for the phenomenal effort that you all put forth to make the third annual Marissa Walk to benefit the National Marfan Foundation incredibly successful from all standpoints. "
Check out how much was collected!


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