Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Tuesday, June 14, 2005

Sir John Tavener: A profoundly spiritual composer
Posted by Jeanette at 6:46 AM

Sir John Tavener's rare heart condition has inspired his first composition for dancers.: "He tells [reporter] Lynne Walker how a recorded pulse drives the piece to its climax" ... "Given the weakness of his central organ, Tavener's heart is probably never far from his mind. "I find the purely scientific approach to the human heart a little analytical and dehumanising," he admits. "An artistic dimension, involving music and dance, takes you on to another level of understanding."


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