Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Monday, June 13, 2005

RedNova News - Health - Dear Doc: June 6, 2005
Posted by Jeanette at 7:04 AM

RedNova News - Health - Dear Doc: June 6, 2005: "Q. several weeks ago, my 36 year-old son had a series of three strokes. He was taken to Ward 25 in the James Cook Hospital, the cardiology and neurology teams were wonderful and explained everything to me.

Another doctor who was looking after my son told me he was not in proportion. His arms were longer than they should have been, also his hands were the same. This I did not understand.

Would it be possible for you to tell me anything about this?"


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