Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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News

Saturday, June 04, 2005

LakeVille [Mich.] football star now faces costly heart surgery
Posted by Jeanette at 10:05 AM

LakeVille football star now faces costly heart surgery: "Ben Mason used to fly down the football field, a tall big-target wideout for the LakeVille High School varsity football team.

Now, a 15-minute game of Hackey Sack leaves the 17-year-old exhausted for up to four hours, often with severe pressure and pain in the middle of his chest.

Ben's fatigue is caused by Marfan syndrome, a connective tissue disorder that puts stress on a patient's eyes, heart, lungs and more."


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