Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Marfan Life 2004 Project Blog posts

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Project Blog 2004 posts

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September 2004
Marfan Blog
(news stories, events, newly discovered links)

Monday, September 06, 2004

Court dismisses man's plea for caning review - SEPT 7, 2004
Posted at 6:48 PM
Court dismisses man's plea for caning review - SEPT 7, 2004: "At last month's hearing, Tan's counsel had argued that he should be spared the cane as there was still an inherent risk of death or serious injury if he was caned.
But in his judgment yesterday, Justice Choo Han Teck said that under the Criminal Procedure Code, no strokes would be given unless a doctor were present and certified the offender fit to undergo caning."


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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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