Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Marfan Blog
(news stories, events, newly discovered links)

Thursday, September 09, 2004

Bruce England on Jeopardy!
Posted at 9:43 PM
Okay, this is not about the Marfan syndrome. However, it is about the husband of Ellen England, who is very active in the Marfan syndrome community. I would be posting this reminder on Marfan-List, but the List is down right now and for the foreseeable future. (It should be up this weekend, but it's hard to tell. When Isabel came through here in Virginia last year, some places were without power for two weeks). In any case, Monday, September 13, Bruce England will be on Jeopardy, so all of you who know him from NMF conferences and Northern California Chapter cookouts, be sure to watch!


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