Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
(news stories, events, newly discovered links)

Monday, July 12, 2004

Walking Tall

"Mike Harrison has donated two wooden pigs to Wetheriggs, and returns each year to Oasis, centre, to remember his Lakes holiday with Nicky."

...snip!...

"He met Nicky Rose, who was 6ft 2in, nine years ago at an event organised by the Tall Persons Club of Great Britain.

"The couple spent three-and-a-half blissful years together until Nicky died as a result of her Marfan’s Syndrome, a rare genetic condition." ...snip!... "Mike makes a yearly pilgrimage back to the Lake District where he lost the love of his life in January 1999."




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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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