Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
(news stories, events, newly discovered links)

Sunday, July 25, 2004

Mary and one of her sons, Zeke

When my oldest son was 4 years old, I thought that something was not right. The doctor told me that everything was fine.

When my son was 11 years old, I thought that something was not right. The doctor told me that he might be depressed and to seek therapy. I did.

When my son was 12 years old, I thought that something was not right. The doctor told me that my son needed more sunshine. He received it.

When my son was 20 years old, I thought that something was not right. The doctor told me that my son had Marfan Syndrome, and that his younger brother had Marfan Syndrome and that I, his Mom, had Marfan Syndrome.

Morale of the story...Mom's listen to your heart and keep seeking answers.

-Mary Kassock

Mary's son Zeke demonstrates a fun magic trick for those with marfan syndrome who are very flexible. Go to the link and see! (You'll need Windows Media Player, and it may take a while to load.)




Post a Comment

To see more of the Marfan Life Project Blog posts
click here
If you have dialup, it'll probably take a while to load. But it's worth the wait!

Top | Home

For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
Marfan Life Info