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Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Marfan Blog
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Saturday, July 24, 2004

In memory of Shawn Eric Heldt
Posted at 11:59 AM


In Memory of:
Shawn Eric Heldt
January 2, 1978 - December 11, 2000
Aortic dissection & Aneurysm

A Special Day on Earth

There was a day of celebration the day you were born,
The Angels stood together and blew their great horns.
God created an Angel to be sent here to Earth,
We all knew it was you, they were announcing your birth.
God knew that all of us would be touched by your love,
So, we celebrate you, your a gift from above.
You have given us so much, much more than you know,
Your love, forever giving, has taught us to grow.
In God's great wisdom He knew what we needed, tis true,
For God's Special Angel, Shawn, is YOU!

I wrote this in memory of Shawn 1/2/78 - 12/11/00, but all of our Special Angels will certainly fit where Shawn's name is.

I dedicate this to all of your Special Angels. Hope this touches you heart in a Special way.

Hugs, Sherry


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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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