Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

What is Marfan syndrome? Marfan Contacts (pen-pals) - Offline until futher notice. Marfan-List e-mail group Personal websites & blogs Marfan pictures Famous people Tall links Marfan humor E-cards Dural ectasia Miscellaneous Marfan pages Marfan organizations Links to Marfan info Links to general medical info Contents of this site

Marfan Life 2004 Project Blog posts

Instructions for donating online to the NMF for Project Blog


Read description of MarfMan



Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

Archives

Project Blog 2004 posts

Blogathon 2003 posts

February 2003
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April 2003
May 2003
June 2003
July 2003
August 2003
September 2003
October 2003
November 2003
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January 2004
February 2004
March 2004
April 2004
May 2004
June 2004
July 2004
August 2004
Marfan Blog
(news stories, events, newly discovered links)

Sunday, July 25, 2004

I'm awake now
Posted at 2:06 PM
Yesterday's Project Blog blogging marathon was fun. I'm already looking forward to the Blogathon next year.

If you sponsored me, THANK YOU! You should receive an e-mail in the next day or two reminding you of your pledge and giving you instructions about how to donate. If you want to do it now, I've posted the instructions here. You can still sponsor me through the Project Blog website (so the total amount of donations raised through Project Blog can be recorded), or if you want, you can always just donate to the National Marfan Foundation.


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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
Marfan Life Info