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Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
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Sunday, July 27, 2003



Roanne Weisman recently had her book, Own Your Health : Choosing the Best from Alternative & Conventional Medicine published. Roanne has the Marfan syndrome, as does her son, Ben. After surgery to replace a mitral valve, a surgery somewhat common to those with the Marfan syndrome, Roanne had a devestating stroke. Rather than rely solely on conventional medicine or solely on complimentary medicine to restore her health, she discovered what worked best for her, and then wrote about it so others may benefit.

Roanne writes in the Introduction, "Growing up with chronic health problems spurred me to venture outside of the world of conventional medicine in search of ways to overcome them. My search led to alternative practices and eventually set me on the path toward integrative medicine. During both college and graduate school, I had already begun to dip a toe into the world of alternative medicine, beginning with a yoga class, which I found helped with strength, balance and posture, while putting no undue stress on my floppy joints. I also found the deep, meditative breathing to be relaxing and it just helped me feel better about my body."

In the foreword to Roanne's book, Dr. Brian Berman writes, "...Ultimately, this book is a celebration of the desire of people to re-humanize medicine, to reclaim a role in their own healing, and to be educated about and have access to choices in treatment."

Thanks, Roanne, for writing a great book and sharing what you've learned with everyone!




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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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