Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
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Sunday, July 27, 2003



In her book, Own Your Health, (see entry below), Roanne Weisman includes an essay by her son, Ben Weisman. In his essay about having the Marfan syndrome, he writes:

"Theater has also helped me accept and understand that it's important to get help when you need it. So I feel okay that yoga, the Alexander lessons the craniosacral work help me feel better in my body. Doing these things has helped me feel freer to use my body onstage, to actually become, physically as well as emotionally, the characters I play.

"I have had a lot more life experiences than most of the teenagers I know. Because of my problems with my body, I will never use drugs, smoke or drink too much and my friends respect that. But I still like rock music, stupid movies, girls, yelling at Red Sox games until I can't even talk and hanging out with my friends. I finally realize that despite everything I've had to deal with because of my body and my genes, there's nothing about me that makes me less deserving of respect than anyone else."





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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
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