Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
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Sunday, July 27, 2003



I'm awake. Still very groggy. I slept for an hour and a half, then was woken up by the phone (it didn't occur to me to turn the ringer off), stayed up for a couple hours, then crashed on the floor while reading. Woke up about three hours later. Since my husband was on midnight shift, and this was his last night, he did the same. We crashed around the same time, then woke up only by my alarm waking me up to remind me to take my calcium channel blockers.

I see a few mistakes and problems on the blog, and will fix them after I eat dinner? breakfast? lunch? whatever! I'm hungry! Again, thanks everyone for a fun time! Can't wait til next year. We'll have more time to plan and get things ready. There were some graphics I had to reformat so they would work on the web, and they didn't come out so good. But they're all great to see even if they're not perfect!




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For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
Marfan Life Info