Long, thin fingers typing away Marfan Life | Marfan Blog Long, thin fingers typing away

Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
Marfan Blog
(news stories, events, newly discovered links)

Sunday, July 20, 2003



Having trouble sponsoring me in the Blogathon?
I have heard from a few people who have said they are confused about how to sponsor me. When you go to sponsor me (or anyone), you are presented with a login prompt for username and password, but you don't have a username or password for the Blogathon site. If you try usernames and passwords from other organizations, websites, your ISP, or whatever, the name/password won't work.

You need to first register on the Blogathon page by filling out your (real) name, your (real) e-mail address, whatever username you want to use, and whatever password you want to use. You get to the registration form by clicking to sponsor a site. At the top of the resulting page, you will be asked to input your username and password, but you don't yet have one. Scroll down and you will see where to start an account. For instance, to sponser me, click here, then scroll down to input your personal information. I trust the Blogathon people to not sell your e-mail address. This e-mail is used first to make sure you are registering yourself. You will receive an e-mail with simple instructions to confirm that you received the e-mail and really do intend to sponsor. Also, the e-mail is used to remind you, after the event, that you had agreed to donate to the charity. You send your check directly to the charity. You do not send money online (unless the charity has an online donation service). Money does not cross my hands or the Blogathon people's hands.

If you want to sponsor another person for another charity besides or instead sponsoring the Marfan Blog, go to the Participants List. The page takes a while to download because there are so many bloggers taking part (great!). You'll see the many different bloggers who are blogging for many worthwhile charities. You can sort this page using one of the criteria listed above the list. To see some of the Hot Spots (bloggers with themes or gimmick), click on Hot Spots. (Marfan Blog is there, under Other).




To see more of the Marfan Life Project Blog posts
click here
If you have dialup, it'll probably take a while to load. But it's worth the wait!

Top | Home

For medical information about the Marfan syndrome that has been approved by the Professional Advisory Board of the National Marfan Foundation, see the NMF website.
Marfan Life Info