Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

What is Marfan syndrome? Marfan Life Forum
(includes penpals) NEW!
Marfans Helping Marfans Marfan-List e-mail group Personal websites & blogs Marfan pictures Famous people Tall links Marfan humor E-cards Dural ectasia Miscellaneous Marfan pages Marfan organizations Links to Marfan info Links to general medical info Contents of this site


Read description of MarfMan



Subscribe with Bloglines

Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

Archives

Project Blog 2004 posts
Blogathon 2003 posts

February 2003
March 2003
April 2003
May 2003
June 2003
July 2003
August 2003
September 2003
October 2003
November 2003
December 2003
January 2004
February 2004
March 2004
April 2004
May 2004
June 2004
July 2004
August 2004
September 2004
October 2004
November 2004
December 2004
January 2005
February 2005
March 2005
Marfan Blog
(news stories, events, newly discovered links)

Thursday, February 10, 2005

USOC to Host 2005 National Girls and Women in Sports Day Celebration at Colorado Springs Olympic Complex
Posted at 7:04 AM
USOC to Host 2005 National Girls and Women in Sports Day Celebration at Colorado Springs Olympic Complex National Girls & Women in Sports Day was established by a Congressional resolution in 1986 to celebrate the achievements of girls and women in sports. The first NGWSD was organized to remember and honor 1984 Olympic volleyball silver medalist Flo Hyman, who died of Marfan’s Syndrome during a volleyball game in 1986. The national celebration, recognized in all 50 states with community-based events, awards and other activities, calls attention to the positive influence of sports and fitness participation and to advances in the struggle for equality and access for women in sports.


Post a Comment
Marfan Life Info