Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Wednesday, February 02, 2005

HHMI News: New Inherited Disease Can Cause Early Aortic Rupture
Posted at 7:37 PM
HHMI News: New Inherited Disease Can Cause Early Aortic Rupture: "Researchers have identified a new inherited syndrome that can cause the heart's aorta to rupture earlier than other aortic aneurysm syndromes, such as Marfan syndrome. They said the newly identified syndrome is a relatively common disorder, which can be corrected with surgery if it is diagnosed early.
The researchers also found that the new genetic disorder offers important lessons about the complexities of disease-causing malfunctions in a particular gene which produces the receptor for a protein known as transforming growth factor beta (TGF?). "


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