Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Marfan Blog
(news stories, events, newly discovered links)

Friday, January 28, 2005

Marfan benefit dance planned at Boston Sheraton hotel
Posted at 7:33 AM
Cindy Wicklein has a broken heart. Not because of a failed romance, but because of Marfan Syndrome - a hereditary condition that affects the connective tissue. ... [read the rest of the story by clicking on the following link:]
Marfan benefit dance planned at Sheraton hotel: "The Boston Beanstalks Tall Club and The National Marfan Foundation Massachusetts Chapter will sponsor the Have-a-Heart for Marfan Benefit Dance Saturday, Feb. 26, from 8 p.m. to midnight at the Sheraton Framingham, 1657 Worcester Road, Rte 9 west, Framingham. "



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