Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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(news stories, events, newly discovered links)

Monday, December 13, 2004

RedNova News - Watching for Marfan's in Primary Care
Posted at 7:16 AM
RedNova News - Watching for Marfan's in Primary Care: "It is not unheard of to see features of Marian's syndrome in primary care, says Dr Stefan Cembrowicz
For a long time I had regarded Marian's syndrome as one of those obscure conditions seen only on professorial ward rounds.The textbooks describe this as a fairly rare condition at one in 5,000 of the population, but having encountered a few patients in our practice, I find that it is not uncommon to spot features of this syndrome quite incidentally. "

Yes, they mean MARFAN syndrome, not Marian's syndrome! They get it right for the rest of the article, but the first two paragraphs say Marian's syndrome.


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