Long, thin fingers typing away Marfan Life Long, thin fingers typing away
Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~ Curvature of the spine
Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness
Weakening of the connective tissue, most dangerously of the aorta
For medical information about the Marfan syndrome, visit the National Marfan Foundation

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Site created & updated by Jeanette Navia
Books of Interest

Chicken Soup for the Fisherman's Soul
Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan syndrome as it is about fishing.

Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences.
Amazon.com

The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.

The Official Patient's Sourcebook on Marfan Syndrome
I have not read this book and do not necessarily recommend it. You may want to see John's review of it at the bottom of Amazon.com's page.

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Marfan Blog
(news stories, events, newly discovered links)

Wednesday, November 17, 2004

Sports: FSU has several reminders of ex-teammate
Posted at 6:41 AM
Sports: FSU has several reminders of ex-teammate: "TALLAHASSEE - You can't miss Ronalda Pierce.

She's featured on the first page of this season's Florida State women's basketball media guide. An action cutout picture and her nickname, 'Nautica,' is emblazoned on a T-shirt her parents and siblings wear. Her jersey number, 55, is on a chic sneaker Nike specially designed for the Seminoles.
Then there are the less tangible, but no less real, signs of her presence. 'We're dedicating this season to her,' sophomore guard Alicia Gladden said. 'She was a good player, a good teammate, a good friend. We know that she wants to be here.'"


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