Project Blog Begins!
Posted at 7:58 AM
Today I will be updating this page every half hour on the half hour (or as near as I can make it) for 24 hours straight. I am participating in a blogging marathon called Project Blog in which people with web logs (blogs) ask for sponsors to pledge donations to a charity if the blogger can stay up all day and night and keep to the schedule of updating.

Sure, sitting in front of a computer all day (which is what I'm going to be doing) is not in any way as strenuous or complicated as organizing and running a marathon, walk-a-thon, bike-a-thon, gala or other event where numerous people are involved in getting supplies and publicity and food prepared, but it is a way to get the word out about the Marfan syndrome to people who may never have heard of it before. And it's something I can do, since I have little time, little money and little courage when it comes to thinking of organizing a big event!

It's also a way to show the public and other people with Marfan in their families what people with the Marfan syndrome are like. In most respects, we're not much different from other people. In other respects, we are. Throughout the day, I hope to blog offerings from the Marfan community to show some tiny slices of our lives.

Please post comments (they may help keep me awake!) and, if you have the Marfan syndrome yourself or in your family, please consider sending me material to blog!