Symptoms: Tall, thin stature ~ Long fingers ~ Unusually long arms and legs ~
Curvature of the spine Chest bone that curves inward or outward ~ Flat feet or high arches ~ Nearsightedness Weakening of the connective tissue, most dangerously of the aorta
Site created & updated by Jeanette NaviaBooks of Interest
Chicken
Soup for the Fisherman's Soul Jennie Logsdon Martin has a story in here. Her story is as much about living with the Marfan
syndrome as it is about fishing.
Own Your Health
Roanne Weisman and her son have Marfan, and in some sections of the book they share their experiences. Amazon.com
The Truth About Chronic Pain
A whole chapter is about Mathew Rudes' experiences. Mathew was born with severe Marfan symptoms.
And yes, you can indeed purchase MarfMan lunch boxes, t-shirts, posters and mousepads at the Marfan Life Online Shop!
Again, thanks Thomas Schrantz!
In MarfMan #5, the writers took a radical turn from established superhero convention. In most cases, superheroes need to take on full time jobs to support themselves, usually as reporters or photographers or scientists of some sort. Those who do not are generally already rich, or have mysterious benefactors who'll provide them with unlimited amounts of cash. MarfMan, however, took a different path. Most superheroes have billion dollar merchandising campaigns, but these campaigns are always separate from the story lines. Whenever the thought of selling their story comes up in a plot, those pesky things called ethics and integrity get in the way and the superhero declines. MarfMan saw things differently. First, he needed the dough, and the prospect to make lots of it easily was very appealing. Secondly, one of his primary missions was to raise awareness for Marfan Syndrome. There is only so much awareness one person can raise. Tapping into the huge world of suggestive T-Shirts and getting parents to buy millions of bendable MarfMan action figures for their whiny five year olds would be a perfect vehicle to get the word about Marfan out. Unfortunately, MarfMan's plans unravel just two days before the merchandising and product tie-ins were set to begin. Upon hearing of the plans, the Baron quickly organizes a hostile takeover of Lincoln Manufacturing and Media Enterprises, the firm who licensed the rights to MarfMan and developed all of the products. His first act as Chairman of the company is to order the burning of all MarfMan items. His second act is to announce a cartoon series and line of toys based loosely on the David and Goliath story, in order to encourage children everywhere to hurl rocks at anyone over six feet tall.
(But just for the record, neither myself nor Jeanette are making a cent off the stuff at that store. All the money is going directly to the company that produces the items.)
